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Welcome to the Human Variome Project’s space dedicated to the range of ethical, social and legal issues that related to the storage and sharing of human variant data and information. Here you will find a range of useful resources that will be useful to a variety of people working in this field. Emphasis is given to the various codes and sources of guidance that related to data sharing.

This list is not intended to be exhaustive; members are encouraged to identify useful resources to share with other members. The resources here are divided into two main groups:

For further information or suggestions please contact the International Coordinating Office.

Core Human Rights References


UNESCO Global Ethics Observatory resources in multiple languages

OECD Links

European Links

HUGO Links

World Medical Association

Other Useful International Links