Chair: Martina Witsch-Baumgartner
HVP ICO contact: Amy McAllister
Creation date: 2012
Scope
The International Confederation of Countries Advisory Council is the Human Variome Project's representative body for HVP Country Nodes. As a formal representative body of the Human Variome Project Consortium, the ICCAC plays an important role in the operation of the Project. Specifically, the role of the ICCAC is to:
- Promote and develop the work of HVP Country Nodes – both their own and others within the network – through active participation in meetings and relevant official working groups and by representing the Human Variome Project at various national and international fora;
- Contribute to the development of Human Variome Project official documentation including Activity Proposals, Standards Development, the Human Variome Project Solution Blueprint and the Human Variome Project Roadmap;
- Provide information on the activities of member nodes for Human Variome Project reports and publications;
- Take an active role in the expansion of the network of HVP Country Nodes around the world by providing guidance for other Consortium Members in initiating, developing, financing and operating their Nodes and by contributing to creating regional networks and developing/developed country partnerships for knowledge sharing and capacity building;
- Provide guidance and advice to the International Scientific Advisory Committee and Human Variome Project Board on matters concerning national and regional collection and sharing of genetic variation information.
Members
Interim Members
Country | Primary Contact | Secondary Contact | Date Joined |
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Angela Solano | 22 February 2016 | |
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Vincent Harley | Vivien Vasic | 28 October 2010 |
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Martina Witsch-Baumgartner | 10 December 2010 | |
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11 November 2010 | ||
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Iscia Lopes-Cendes | Vera Lucia Gil da Silva Lopes | 7 October 2016 |
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Jordan Lerner-Ellis | Matthew Lebo | 3 December 2014 |
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Ming Qi | 6 January 2015 | |
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Andreas Hadjisavvas | Maria Loizidou | 19 November 2010 |
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Milan Macek | 20 May 2012 | |
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Propser Lukusa | 29 April 2014 | |
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Sherifa Ahmed Hamed | Mahmoud Raafat Kandil | 1 November 2010 |
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Maurizio Genuardi | Domenico Coviello | 12 March 2014 |
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Fahd Al-Mulla | 26 October 2010 | |
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Zilfalil bin Alwi | Amir Feisal Merican | 24 October 2010 |
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Luz Berenice Lopez Hernandez | Augusto Rojas-Martinez | 8 July 2012 |
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Tilak Shrestha | 18 April 2011 | |
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Marielle E. van Gijn | Johan den Dunnen | 3 November 2014 |
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Oyekanmi Nash | Hadiza Mahey Rasheed-Jada | 4 November 2013 |
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Jong Bhak | 2 August 2013 | |
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Raj Ramesar | Collet Dandara | 26 February 2015 |
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Angel Carracedo | Maria Jesus Sobrido | 21 December 2010 |
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Malin Melin | Lucia Cavelier | 20 November 2014 |
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Andrew Devereau | Sir John Burn | 14 June 2012 |
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Michael Watson | 30 May 2012 | |
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Aída Falcón de Vargas | 8 February 2013 | |
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Chí Dũng Vũ | 18 December 2010 |
Observers
Country | Individual | Date Joined |
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Sharif Akhteruzzaman | 13 December 2015 |
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Denise Brito | 16 September 2014 |
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Dylan Mordaunt | 20 November 2015 |
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Catherine Lynn Silao | 01 November 2015 |
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Celeste Bento | 23 July 2014 |
Member Types
Interim
Interim status is offered to those who are able to meet two requirements -
- agree to work towards meeting the requirements of the core definition of HVP Country Nodes
- are able to provide satisfactory evidence that they in fact represent their country.
In most cases this evidence would be a letter with appropriate letterhead addressed either to the individual or group making the application or to the Scientific Director of the Human Variome Project indicating the level of recognition/endorsement from one or more of the following: the national Human Genetics society; an officer of the national Ministry of Health, or Science and Technology or similar; the national college of pathologists or similar professional society.
Interim status is only available for one organisation in each country.
Observer
Observer status is offered to national organisations and individuals who intend to establish an HVP Country Node but do not yet meet the requirements of interim status, or who feel that they are not yet ready to make an application. Observer Status can be offered to a maximum of four organisations or individuals per country.
Meeting Calendar
Work Products
International Confederation of Countries Advisory Council Work Products