The Povey et al 2010 Human Mutation ethics paper and the 12 points in Table 1 of the same paper were developed to help address ethical issues in database curation, and LSDB curators are encourage to implement these reccommendations. However, it appears that most LSDB curators find these 12 points difficult to fulfil. The Human Variome Project Gene/Disease Specific Database Advisory Council feel that a more practical checklist should be developed so LSDB curators can ensure compliance with ethical issues.
- WG08: Ethics Checklist for Gene/Disease Specific Database Curators and Submitters - Charter GDSDBAC/C/004/01/EN
Working Group Members
Rosemary Ekong, University College, London, UK