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Wednesday, April 24, 2019 9:00 - 13:00

Ethics Half Day @ the Human Genome Meeting 2019

Towards Implementing Genomic Medicine

April 24th - 26th 2019

EWHA WOMANS UNIVERSITY, SOUTH KOREA

“Open Science: What do we need to know to protect the interests of all stakeholders: patients, researchers and clinicians?”

A workshop led by the HUGO Committee on Ethics, Law and Society (CELS) and the Human Variome Project (HVP)

 

In a world where there is increasing will to ensure that all benefit from scientific advances, how do those working in the space of human genomics contribute to this? 

One model is Open Science, characterised by the principle of the free dissemination of knowledge, with the goal to accelerate innovation and streamline translation from bench to application. 

The idea that science is accessible to everyone, anywhere in the world, raises important questions for scientists. This workshop will provide an overview of the ethical and legal implications for global research.

 


9.00-9.10 Welcome

Prof Kyung Suk Choi, Director of the EWHA Institute for Biomedical Law and Ethics (EWHA Womans University, South Korea)

9.10-9.30 Introduction to ‘Open Science’

Assoc Prof Benjamin Capps, Chair HUGO CELS, Department of Bioethics (Dalhousie University, Canada)

09.30-10.10 What is Open Science?

Assoc Prof Yann Joly, Research Director of the Centre of Genomics and Policies (Montreal University, Canada)

Commentary by Prof So Yoon Kim, Director of Medical Law and Ethics, College of Medicine (Yonsei University, South Korea)

Chaired by Dr Vicki Xafis, Centre for Biomedical Ethics (National University of Singapore, Singapore)

10.10-11.50 Why Do Open Science?

Prof Ruth Chadwick, Distinguished Research Professor (Cardiff University, UK)

Commentary by Prof Catherine Mills, Monash Bioethics Centre (Monash University, Australia)

Chaired by Assistant Prof Tamra Lysaght, Vice Chair HUGO CELS, Centre for Biomedical Ethics (NUS, Singapore)

Break 10.50-11.10

11.10-11.50 Benefits and Evidence of Open Science Initiatives

Helen Robinson, HVP and Nossal Institute for Global Health (University of Melbourne, Australia)

Commentary by Professor Ingrid Winship, Chair NHMRC Australian Health Ethics Committee (University of Melbourne, Australia)

Chaired by Dr Owen Schaefer, Centre for Biomedical Ethics (NUS, Singapore)

11.50-12.30 Legal Challenges for Open Science

Won Bok Lee (Korea) EWHA Institute for Biomedical Law and Ethics (EWHA Womans University, South Korea)

Commentary by Markus Ladube, Centre for Biomedical Ethics (NUS, Singapore)

Chaired by A/Prof Tamra Lysaght, Centre for Biomedical Ethics (NUS, Singapore)

12.30-13.00 Panel Discussion

Chaired by Benjamin Capps, Department of Bioethics (Dalhousie University, Canada)