Beijing Meeting Wraps Up
For Immediate Release
Beijing, 13 December — The Human Variome Project Beijing Meeting wrapped up yesterday after five days of high level talks between members of the Human Variome Project Consortium and the Human Variome Project Chinese Node. The meeting focussed on encouraging new international collaborations that will enable the world’s genomic knowledge to be shared in a bid to improve global health. A particular focus of the meeting was how low- and middle-income countries can be supported.
The meeting also saw the official opening of the Human Variome Project Chinese Node, a multi-million dollar initiative of the Chinese Government to dramatically improve the country’s capacity in medical genetics, genetic diagnostics and genetic counselling. The Human Variome Project Chinese Node has also committed to undertaking 25% of the total effort required to complete the Human Variome Project, a figure in line with their contribution to the world’s population.
At the close of the meeting the Human Variome Project Consortium released a joint statement with the Human Variome Project Chinese Node, reaffirming their commitment to the free and open sharing of genetic disease in a manner that protects the privacy and dignity of patients and their families. The Human Variome Project next meets at UNESCO headquarters in Paris in June, at their fourth biennial meeting.
About the Human Variome Project
The Human Variome Project is an international consortium of clinicians, scientists and pathologists who are committed to the free and open sharing of information on genetic variations and their effect.
The Human Variome Project acts as an umbrella organisation across multiple countries, institutions and initiatives. It works to encourage communication and collaboration around it central vision—a reduction in the burden of genetic disease.
The Human Variome Project has three roles: to establish and maintain the standards, systems and infrastructure necessary for the worldwide collection, curation and sharing of information across the genome; to be a vehicle for collaboration on research, and policy; and to educate the field and the public about the prevalence and impact of genetic disease and the important role the sharing of information has in combating it.