International Confederation of Countries Advisory Council

Chair: Martina Witsch-Baumgartner - until May 2016
HVP ICO contact: Amy McAllister
Creation date: 2012

Scope

The International Confederation of Countries Advisory Council is the Human Variome Project's representative body for HVP Country Nodes. As a formal representative body of the Human Variome Project Consortium, the ICCAC plays an important role in the operation of the Project. Specifically, the role of the ICCAC is to:

1. Promote and develop the work of HVP Country Nodes – both their own and others within the network – through active participation in meetings and relevant official working groups and by representing the Human Variome Project at various national and international fora;
2. Contribute to the development of Human Variome Project official documentation including Activity Proposals, Standards Development, the Human Variome Project Solution Blueprint and the Human Variome Project Roadmap;
3. Provide information on the activities of member nodes for Human Variome Project reports and publications;
4. Take an active role in the expansion of the network of HVP Country Nodes around the world by providing guidance for other Consortium Members in initiating, developing, financing and operating their Nodes and by contributing to creating regional networks and developing/developed country partnerships for knowledge sharing and capacity building;
5. Provide guidance and advice to the International Scientific Advisory Committee and Human Variome Project Board on matters concerning national and regional collection and sharing of genetic variation information.

Members

Interim Members

Country	Primary Contact	Secondary Contact	Date Joined
Argentina	Angela Solano		22 February 2016
Australia	Bryan Williams	Vivien Vasic	28 October 2010
Austria	Martina Witsch-Baumgartner		10 December 2010
Belgium	Kathleen Claes	Thomy de Ravel	11 November 2010
Brazil	Vera Lúcia Gilda Silva Lopes	lscia Lopes Cendes	7 October 2016
Canada	Jordan Lerner-Ellis	Matthew Lebo	3 December 2014
China	Ming Qi		6 January 2015
Cyprus	Andreas Hadjisavvas	Maria Loizidou	19 November 2010
Czech Republic	Milan Macek		20 May 2012
Democratic Republic of the Congo	Propser Lukusa		29 April 2014
Egypt	Sherifa Ahmed Hamed	Mahmoud Raafat Kandil	1 November 2010
Italy	Maurizio Genuardi	Domenico Coviello	12 March 2014
Kuwait	Makia Marafie	Fahd Al-Mulla	26 October 2010
Malaysia	Zilfalil bin Alwi	Amir Feisal Merican	24 October 2010
Mexico	Augusto Rojas-Martinez	Diego Arenas-Aranda	8 July 2012
Nepal	Tilak Shrestha	Rebati Man Shrestha	18 April 2011
The Netherlands	Peter E.M. Taschner	Marielle E. van Gijn	3 November 2014
Nigeria	Oyekanmi Nash	Hadiza Mahey Rasheed-Jada	4 November 2013
Republic of Korea	Myungchull Rhee	Jong Bhak	2 August 2013
South Africa	Raj Ramesar	Collet Dandara	26 February 2015
Spain	Angel Carracedo	Maria Jesus Sobrido	21 December 2010
Sweden	Richard Rosenquist	Johan Rung	20 November 2014
United Kingdom	Andrew Devereau	Sir John Burn	14 June 2012
United States of America	Michael Watson	Bruce Korf	30 May 2012
Venezuela	Aída Falcón de Vargas		8 February 2013
Vietnam	Chí Dũng Vũ		18 December 2010

Observers

Country	Individual	Date Joined
Bangladesh	Sharif Akhteruzzaman	13 December 2015
Mozambique	Denise Brito	16 September 2014
Portugal	Celeste Bento	23 July 2014
Philippines	Catherine Lynn Silao	01 November 2015
New Zealand	Dylan Mordaunt	20 November 2015

Member Types

Interim

Interim status is offered to those who are able to meet two requirements -

1. agree to work towards meeting the requirements of the core definition of HVP Country Nodes
2. are able to provide satisfactory evidence that they in fact represent their country.
   In most cases this evidence would be a letter with appropriate letterhead addressed either to the individual or group making the application or to the Scientific Director of the Human Variome Project indicating the level of recognition/endorsement from one or more of the following: the national Human Genetics society; an officer of the national Ministry of Health, or Science and Technology or similar; the national college of pathologists or similar professional society.

Interim status is only available for one organisation in each country.

Observer

Observer status is offered to national organisations and individuals who intend to establish an HVP Country Node but do not yet meet the requirements of interim status, or who feel that they are not yet ready to make an application. Observer Status can be offered to a maximum of four organisations or individuals per country.

Meeting Calendar

• ICCAC Meeting - October 2017 Tuesday, October 10, 2017 (12:00 - 13:00)
• ICCAC Meeting - December 2017 Tuesday, December 12, 2017 (12:00 - 13:00)

Work Products

International Confederation of Countries Advisory Council Work Products